Feasibility and Acceptability Findings of an Energy Balance Data Repository of Children, Adolescents, and Young Adults with Cancer

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dc.citation.articleNumber2879
dc.citation.issueNumber9
dc.citation.journalTitleJournal of Clinical Medicine
dc.citation.volumeNumber9
dc.contributor.authorSwartz, Maria C.
dc.contributor.authorTeague, Alaina K.
dc.contributor.authorWells, Stephanie J.
dc.contributor.authorHoney, Theresa
dc.contributor.authorFu, Min
dc.contributor.authorMahadeo, Kris M.
dc.contributor.authorKabiri, Laura S.
dc.contributor.authorChandra, Joya
dc.contributor.authorMoody, Karen
dc.contributor.authorSchadler, Keri
dc.date.accessioned2021-09-21T15:37:54Z
dc.date.available2021-09-21T15:37:54Z
dc.date.issued2020
dc.description.abstractCancer patients suffer changes in energy balance (EB), the combination of energy intake (nutrition) and energy expenditure (physical activity (PA)), which may influence cancer-related morbidity, mortality, and quality of life. Significant gaps remain in our understanding of the frequency and magnitude of these EB changes. Herein, we report on the feasibility and acceptability of a longitudinal repository of EB outcomes in children, adolescents and young adults (AYA) with cancer along the cancer continuum to fill these gaps. This EB repository includes PA, nutrition, and physical function (PF) parameters. PA data were gathered through activity trackers. Nutritional data were gathered through food diaries and micronutrient labs. PF was assessed with validated objective and patient-reported measures. Feasibility was achieved with >50% enrollment of eligible patients (n = 80, Mage = 18.1 ± 7.5); 26 were children with cancer and 54 were AYAs with cancer. An 88.75% retention rate indicated acceptability. Despite COVID-19 disruptions, >50% of participants provided completed data for PA and micronutrient labs as of April 2020. Food diaries and PF data collection experienced disruptions. Methodological adaptations are in progress to minimize future disruptions. Overall, our findings demonstrate that prospective EB assessments are feasible and acceptable among children and AYAs with cancer.
dc.identifier.citationSwartz, Maria C., Teague, Alaina K., Wells, Stephanie J., et al.. "Feasibility and Acceptability Findings of an Energy Balance Data Repository of Children, Adolescents, and Young Adults with Cancer." <i>Journal of Clinical Medicine,</i> 9, no. 9 (2020) MDPI: https://doi.org/10.3390/jcm9092879.
dc.identifier.digitaljcm-09-02879-v3
dc.identifier.doihttps://doi.org/10.3390/jcm9092879
dc.identifier.urihttps://hdl.handle.net/1911/111391
dc.language.isoeng
dc.publisherMDPI
dc.rightsThis is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.titleFeasibility and Acceptability Findings of an Energy Balance Data Repository of Children, Adolescents, and Young Adults with Cancer
dc.typeJournal article
dc.type.dcmiText
dc.type.publicationpublisher version
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