At the Cross-Roads: African American Spirituality, Clinical Trials, and Patient-Subject Decision-Making

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dc.contributor.advisorPinn, Anthony B.en_US
dc.contributor.committeeMemberBongmba, Elias K.en_US
dc.contributor.committeeMemberHoward Ecklund, Elaineen_US
dc.creatorLaws, Terrien_US
dc.date.accessioned2016-01-11T16:56:07Zen_US
dc.date.available2016-01-11T16:56:07Zen_US
dc.date.created2015-05en_US
dc.date.issued2015-04-24en_US
dc.date.submittedMay 2015en_US
dc.date.updated2016-01-11T16:56:07Zen_US
dc.description.abstractPublished assessments of religion and health scholarship observe the substantial need for the study of African American spirituality, and that what is available has implicated this cultural production as helpful and supportive of good health yet inhibitive in end-of-life decision making. This qualitative study from semi-structured interviews with African American prostate cancer patients finds spirituality as helpful to sustaining patients in their decisions to risk medical research although patients determine their decision to accept risk based on their understanding of the medical science presented to them. They are comforted by the agency available to them through bioethical principles and practices, most notably, informed consent. The findings of this study contest the centrality of the Tuskegee narrative popularly believed to be inhibitive to African American clinical trial participation as well as the over-simplification of the relationship between religion and African Americans’ cancer fatalism widely held among members of the health professions. The study acknowledges that structural issues prevent too many African Americans from access to the option of clinical trial participation. Two constructs are offered: a cultural sociological approach (Jeffrey Alexander; Gordon Lynch) to re-imagining Tuskegee as a sacred rhetoric, and a sociological approach to risk acceptance and risk taking referencing institutionalized religion; both constructs are derived from Durkheimian theory. These solutions are offered as responses to the data that emerged through the qualitative research and existing treatments of religion and health in African American religious scholarship. This study suggests that there is a shifting paradigm in which more African Americans will merge their spirituality with scientific knowledge to increase medical research participation with the long term aim of reducing health disparities. In turn, additional theoretical frameworks will emerge beyond the closed loop epistemology inherent in Durkheim’s theory. The research agenda begun here points to implications for theory and practice in fields including African American Religions, pastoral theology, health policy, health services, and bioethics.en_US
dc.format.mimetypeapplication/pdfen_US
dc.identifier.citationLaws, Terri. "At the Cross-Roads: African American Spirituality, Clinical Trials, and Patient-Subject Decision-Making." (2015) Diss., Rice University. <a href="https://hdl.handle.net/1911/87805">https://hdl.handle.net/1911/87805</a>.en_US
dc.identifier.urihttps://hdl.handle.net/1911/87805en_US
dc.language.isoengen_US
dc.rightsCopyright is held by the author, unless otherwise indicated. Permission to reuse, publish, or reproduce the work beyond the bounds of fair use or other exemptions to copyright law must be obtained from the copyright holder.en_US
dc.subjectAfrican American Religionsen_US
dc.subjectClinical trialsen_US
dc.subjectRisken_US
dc.subjectSocialen_US
dc.subjectDurkheimen_US
dc.subjectSociology of knowledgeen_US
dc.subjectTuskegeeen_US
dc.subjectProstate Canceren_US
dc.titleAt the Cross-Roads: African American Spirituality, Clinical Trials, and Patient-Subject Decision-Makingen_US
dc.typeThesisen_US
dc.type.materialTexten_US
thesis.degree.departmentReligious Studiesen_US
thesis.degree.disciplineHumanitiesen_US
thesis.degree.grantorRice Universityen_US
thesis.degree.levelDoctoralen_US
thesis.degree.nameDoctor of Philosophyen_US
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