Ethical Considerations of a National Database for Children with Medical Complexity

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dc.citation.issueNumber05.23.17en_US
dc.citation.journalTitleIssue Briefen_US
dc.contributor.authorMoore, Quianta L.en_US
dc.contributor.authorBlagg, Taraen_US
dc.contributor.authorTodd, Hannahen_US
dc.contributor.orgJames A. Baker III Institute for Public Policyen_US
dc.date.accessioned2017-10-06T18:17:06Zen_US
dc.date.available2017-10-06T18:17:06Zen_US
dc.date.issued2017en_US
dc.descriptionThe Advancing Care for Exceptional Kids Act proposes a national database that would serve as a centralized source of information on children with medically complex conditions. The aim is to improve treatment and care coordination. The authors of this brief argue, however, that the database could put children and their families at risk of discrimination by making their health information public, and therefore accessible to employers and health insurers.en_US
dc.identifier.citationMoore, Quianta L., Blagg, Tara and Todd, Hannah. "Ethical Considerations of a National Database for Children with Medical Complexity." <i>Issue Brief,</i> no. 05.23.17 (2017) James A. Baker III Institute for Public Policy: <a href="https://www.bakerinstitute.org/research/ethical-considerations-national-database-children-medical-complexity/">https://www.bakerinstitute.org/research/ethical-considerations-national-database-children-medical-complexity/</a>.en_US
dc.identifier.urihttps://hdl.handle.net/1911/97762en_US
dc.publisherJames A. Baker III Institute for Public Policyen_US
dc.titleEthical Considerations of a National Database for Children with Medical Complexityen_US
dc.typeReporten_US
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